Wednesday, August 12, 2009

A chapter finally closes...

This is the story of a boy who decided that he wanted to be alittle different then most. He chose to come to earth with a few hardships. He has been amazing through all of his trials. However a few days ago one of them finally came to a close. See he was born with bilateral clubfeet and has had to endure many weeks of casting, heel cord surgery, and shoes connected to a bar.
He never smelled like baby powder, he always smelled like vinegar. This was how we had to soak his casts off each week. Nothing like dipping your little baby in a trash can full of warm vinegar water.
At about ten weeks old he had to have his heel cord lengthened. It was an outpatient surgery however he was kept overnight for observation. Then it was back into casts again for a couple of weeks.
After his surgery and another few weeks of casts, Owyn was able to get into the Denis Browne
Bar. It was some lovely white open toed shoes connected to a metal bar that kept his feet pointed and angled out. He has had this bar for just over 3 years. He had to wear it all the time for about six months and the he was able to only wear it at nap and bedtimes. Believe it or not he learned to crawl with that bar
on. This past week we saw his orthopaedic surgeron and we got the wonderful news that his feet are completely corrected. He has only a slight 5% chance of a relapse. As of now he has no pain in his feet and only diminished feeling. Hopefully he will not suffer much pain throughout his life because of the treatment plan that we followed. It was probably was the best news we have gotten in quite awhile.













Saturday, August 8, 2009

What a long week...

we have had. We were able to go up to Utah for a quick visit along with an eye appt. for Owyn. This was his four month check up from his surgery and well we knew going in that we were probably facing another surgery. His left eye has not improved and now instead of two droppy eyes he now has two uneven eyes as his right eye has taken well to the surgery. So he is set to have surgery again on Oct. 1 (Happy Birthay to Taylor). I bet he wont be very happy to have to share his day.LOL While we were up in Utah Trystan and I decided that it was the best time to get sick and both of us ended up with strep throat. Fun Fun, as Annaliese is still having her ups and downs with her meds we both ended up wearing masks while in her presence. Lucky for us she still has not gotten the strep, in a few days we should be in the clear. As for her her numbers are still all over the place. In the last four weeks (with her neupogen shots on Mon and Thrus) her numbers have been 98, 89, 1079, and now 849. So as you can tell she is still not stable by any means but there really is nothing they can do because if they adjust her meds then we end up way to high. We are still waiting on her genetic testing (good thing we are not in any hurry to have those results) and for the time being she is not having to go in weekly but monthly right now. She is as stable as she is going to get at least for the time being. On Tuesday we took Owyn into the dentist to have some cavities filled (this is what happens when you have a kid who has taste and texture issues) and found out that he is already starting to get more so we were informed that he needs to have cleanings every three months instead of just twice a year. They are putting in on flouride tablets to see if they can help keep his sugar bugs at a minimum. We have not had much luck with that kid lately and I actually am dreading taking him in for a feet check up, with the way things are going it will be our luck that he will leave with casts again.LOL And on that same day he has a yearly eye exam, so we will just assume that we will leave with a prescription for glasses as well. As you can tell we are not very optimistic right now.

On a good note though they boys are getting excited about school starting up in a few weeks. I think they are just excited to not have to go the anymore dr. appts. They have been great sports all summer with the pain of all of Annaliese's appts but I still feel very sorry for them. I think school with help them recover this horrible summer. Bryan starts school on 1 Sept and this is his final class before he is able to apply for the PA program with the military. We are very hopeful that next year sometime we will be heading to TX for him to go to school. We will let you all know how that goes when he hears back from the military board.