Saturday, August 8, 2009

What a long week...

we have had. We were able to go up to Utah for a quick visit along with an eye appt. for Owyn. This was his four month check up from his surgery and well we knew going in that we were probably facing another surgery. His left eye has not improved and now instead of two droppy eyes he now has two uneven eyes as his right eye has taken well to the surgery. So he is set to have surgery again on Oct. 1 (Happy Birthay to Taylor). I bet he wont be very happy to have to share his day.LOL While we were up in Utah Trystan and I decided that it was the best time to get sick and both of us ended up with strep throat. Fun Fun, as Annaliese is still having her ups and downs with her meds we both ended up wearing masks while in her presence. Lucky for us she still has not gotten the strep, in a few days we should be in the clear. As for her her numbers are still all over the place. In the last four weeks (with her neupogen shots on Mon and Thrus) her numbers have been 98, 89, 1079, and now 849. So as you can tell she is still not stable by any means but there really is nothing they can do because if they adjust her meds then we end up way to high. We are still waiting on her genetic testing (good thing we are not in any hurry to have those results) and for the time being she is not having to go in weekly but monthly right now. She is as stable as she is going to get at least for the time being. On Tuesday we took Owyn into the dentist to have some cavities filled (this is what happens when you have a kid who has taste and texture issues) and found out that he is already starting to get more so we were informed that he needs to have cleanings every three months instead of just twice a year. They are putting in on flouride tablets to see if they can help keep his sugar bugs at a minimum. We have not had much luck with that kid lately and I actually am dreading taking him in for a feet check up, with the way things are going it will be our luck that he will leave with casts again.LOL And on that same day he has a yearly eye exam, so we will just assume that we will leave with a prescription for glasses as well. As you can tell we are not very optimistic right now.

On a good note though they boys are getting excited about school starting up in a few weeks. I think they are just excited to not have to go the anymore dr. appts. They have been great sports all summer with the pain of all of Annaliese's appts but I still feel very sorry for them. I think school with help them recover this horrible summer. Bryan starts school on 1 Sept and this is his final class before he is able to apply for the PA program with the military. We are very hopeful that next year sometime we will be heading to TX for him to go to school. We will let you all know how that goes when he hears back from the military board.

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