Some great news

We had Annaliese's hemo appt today and we were surprised with an ANC of 2200. She had her shot schedule revised about two weeks ago and now we are giving then every 5 days instead of Mon and Thur. Today we fully expected her to be at 0 as she has not had a shot for 5 days (she is due tonight) but she has a great ANC. When I questioned the dr whether or not this was meds and her adjusting I was told NO THIS IS HER OWN BODY, meaning it is working without the meds. YEAH!!!! If this trend continues then it is very likely that she has autoimmune neutropenia and she may be on the road to recovery. We couldn't be happier right now. We go back in three weeks and if she is still maintaining her ANC on her low points then we will space her injections out even more until she doesn't need them anymore. We are so excited about this prospect. On the other hand she is now being tested for a blood disorder called Von Willebrande (VWB). She has had bruising up and down her spine and across her lower back off and on for quite a while now. She gets bruises on her body that we can not explain and so they are checking into it as the dr was concerned this last time we saw him. Now let me add that I am sure you are thinking cancer as this is a BIG sign of leukemia BUT her platelet counts are great (even very high at points) so this is NOT a concern. If you search VWB then it will explain what it is but is something her ped. mentioned even when she was a newborn. They did the work up today on her and we should now the results in about a month. Just a little funny about our appt today... Annaliese has viens that are very small and love to roll. I have the same problem and am a VERY HARD stick because of it. They normally have to stick her twice (on a good day, more most often) to get the one tube we need for her CBC. However today they needed four tubes to get the workup done. Our hemo has their own blood drawing staff and we always have the same lady (I can never remember her name though) and when they told her that they need four tubes today she started to cry. She came in and kept telling me she didnt think she could get it. She just kept repeating "You want four tubes from Annaliese Malcolm and I am lucky to even get one each time." over and over. It was quite funny but after two pokes and TONS of proding with the needle they were able to get blood from her hand.